Ever hit a wall trying to get health data?

If you have ever tried to build, research or prototype something health-related, you've probably hit the same wall many of us have: the data you need is either hard to get, stuck behind long approvals, in the wrong format, or doesn't represent the populations you are working with. we are conducting this survey to better understand the real experience, challenges and needs of healthcare data users across Africa. Your feedback will go a long way in helping us identify the most important barriers, understand current workarounds and guide the development of better solutions for healthcare research and innovation.

This survey takes approximately 2-3 minutes to complete. Thank you for contributing your insights!

Which best describes your role?

The last time you needed healthcare data for a project, what were you trying to build or investigate?

Please briefly describe the project or problem you were working on and why you needed the data

What type of healthcare data did you need?
(Select all that apply)

What was the biggest challenge you faced when trying to obtain healthcare data?

Could not access suitable datasets

Approval or permission processes took too long

Dataset was incomplete or too small

Dataset did not represent my target group

Dataset quality was unreliable

Dataset format was difficult to use

Cost was too high

Privacy or legal restrictions prevented access

Other

When suitable healthcare data was unavailable, what did you do?

Used a publicly available but imperfect dataset

Used data from another country or population

Created synthetic/mock data manually

Changed the scope of the project

Abandoned or delayed the project

Waited for access approval

Other

If a reliable source of ethically generated healthcare datasets existed, how would access most likely be funded?

I’d have paid personally

My institution or research group would pay

A research grant or project budget would pay

My company/startup would pay

I would only use free resources

Not sure

What would make a synthetic healthcare dataset useful for your work?

Would you be open to a quick 15-minute call to tell us more about your experience?

Yes, I would be interested in a short discussion