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KeepnAI | Gastroparesis and GI Motility Disorders | Patient Support app | Survey

Living with gastroparesis or another motility disorder means that eating - something most people never think about - can become the hardest part of the day. Nausea, vomiting, early fullness, bloating and pain can make every meal a decision, and bad weeks can end in the emergency room. Treatment options are limited, dietary advice is often a one-page handout, and many people feel they have to work it out on their own.

Practical, personalized support with meals, fluids, nutrition and medication timing may help some people manage these challenges — but most people with gastroparesis don’t have simple, personalized day-to-day tools to help them do that.

That’s what we’re building at KeepnAI: a friendly, easy-to-use AI app designed to give people personalized, day-to-day guidance on eating, nutrition, hydration and medication routines — working alongside, not instead of, their healthcare team.

To build something that truly fits the needs of people living with gastroparesis and related conditions, we want to hear from you first. We would like to learn about your experiences, the support you currently receive, and what kinds of additional support, if any, would be useful to you.

This survey should take approximately 8–10 minutes. Participation is voluntary. You may skip sensitive questions where an option to do so is provided.

Please do not include your name or other identifying information in your answers. Your responses will be used to inform product research and development. This survey is for research into support needs and is not intended to provide medical advice or replace your healthcare team. If you are experiencing new, severe, or concerning symptoms, contact your healthcare professional or seek urgent care as appropriate.

Section 1 — About you and your condition

1. What is your age range?

2. In which country/region do you currently live?

3. Which conditions have you been diagnosed with? Select all that apply.

4. Has your diagnosis been confirmed by a gastric emptying test or other motility test?

5. How long have you had symptoms?

6. Over the past few months, how would you rate your symptoms overall?

7. How do you currently get most of your nutrition?

By mouth — mostly regular foods

By mouth — mostly soft, blended or liquid foods

By mouth, plus nutrition drinks

Feeding tube (e.g., NJ, J or G-J tube)

IV nutrition (parenteral nutrition/TPN) or regular IV fluids

A combination of the above

Prefer not to say

7a. Which challenges have you had with tube or IV nutrition? Select all that apply.

Infections

Tube or line problems (e.g., blockage, displacement)

Tolerating the formula or feeding rate

Managing feeds at home and around daily life

Access to a home nutrition support team

Insurance or supply problems

Impact on social life, work or sleep

I have not had these challenges

Prefer not to say

8. Which treatments are you currently using? Select all that apply.

9. Do you take any medication every day, long-term, for your gastroparesis or motility symptoms?

Section 2 — Symptoms and their impact

10. In the past few months, which symptoms have you experienced? Select all that apply.

11. Which up to four of these have been most difficult for you?

12. Overall, how much have symptoms interfered with your everyday life in the past 30 days? (0 = Not at all ····· 10 = Extremely interfered with everyday life)

13. In the past 12 months, how many times have you gone to the emergency room or been admitted to hospital or urgent care because of your symptoms?

13a. If you did visit ER, what were the main reasons? Select all that apply (If you haven't visited ER choose "not relevant").

14. Which areas of your life are affected by your condition? Select all that apply.

15. If you take (or have taken) long-term medication for your symptoms, which challenges have you experienced? Select all that apply.

Section 3 — Eating, nutrition and daily routines

16. In the past few months, have you faced any of these eating or nutrition challenges? Select all that apply.

17. Which of these have you tried, to manage symptoms through eating or drinking? Select all that apply.

18. How confident do you feel about knowing what to eat and drink, and when, to manage your symptoms?

19. Which aspects of managing your condition day to day are challenging for you? Select all that apply.

Section 4 — What you have tried and where support is missing

20. In the past few months, what have you done to manage symptoms? Select all that apply.

21. Overall, how helpful have the strategies you tried been?

22. In the past few months, was there a time when you wanted more help managing symptoms, eating and nutrition, fluids, medication routines or daily life?

23. Have side effects or other burdens ever led you to delay, skip, reduce, pause or stop a recommended medication or diet plan — or seriously consider doing so? Select all that apply.

Yes, I changed or stopped a medication after discussing it with my healthcare team

Yes, I changed or stopped a medication without discussing it first

Yes, I stopped following a recommended diet plan

I seriously considered changing or stopping, but did not

Not applicable

Prefer not to say

23a. What were the main reasons? Select all that apply.

24. Have you been able to access a dietitian with experience in gastroparesis or motility disorders?

Section 5 — What support would be useful?

25. Which types of support would be most useful to you? Select up to five.

26. What would make you more comfortable using a digital support tool? Select all that apply.

27. What is the biggest challenge you face in managing gastroparesis or your motility disorder in everyday life?

Section 6 — Feedback on a possible support app

KeepnAI is exploring a digital platform that could offer practical support between appointments, such as daily meal ideas adapted to your symptoms and the foods you tolerate, help keeping nutrition and fluids adequate, medication timing reminders, a check for medicines that may slow digestion or interact, symptom tracking, and help identifying when to contact a healthcare professional. The goal would be to complement — not replace — your healthcare team. No specific health benefit is guaranteed, and any medical or medication-related guidance would need appropriate safety review.

28. How interested would you be in trying a tool like this if it were available?

29. Which factors would most influence whether you used it? Select up to four.

30. If a tool like this were available, how much would you personally be willing to pay per month for using it? (Our goal is for your health insurance provider to cover the cost of this app in the future, so you can use it free of charge. However, if insurance coverage is not available, would you be willing to pay for this type of support? If so, how much would you be willing to pay per month?)

Section 7 — Optional beta participation

If you would like to be considered for free beta testing when KeepnAI becomes available, please use This Link to a separate contact form.

To preserve the anonymity of this survey, do not enter your name, email address, or phone number here. The separate form should explain how contact details will be used and should not collect or link back to your survey answers.