Genetics of Breast Cancer Research Study Feedback Survey

Thank you for taking part in our study and for sharing your feedback. Your responses can help us improve the experience for all of our research participants.

Q1. What was your primary reason for joining this study?

A

To contribute in the fight against breast cancer to help others

B

To learn more about how my experience compares

C

To discover my ancestry

D

To learn about genetic research

E

A friend, family member, or clinician recommended it

F

Other

Q2. How has breast cancer primarily affected you?

A

I have or had breast cancer

B

Someone I care about has or had breast cancer

C

I have not been directly affected

Q3. If the features below were available, which would make your participation feel more meaningful or worthwhile to you?

Select All that Apply

Q3. If the features below were available, which would make your participation feel more meaningful or worthwhile to you?

A

Seeing how my ancestry relates to general breast cancer risk

Example: General, educational information about breast cancer patterns seen across different ancestry groups — not personal risk predictions

B

A personalized traits dashboard based on my DNA

Example: Fun or wellness-related traits (e.g., taste preferences). This study cannot provide personalized genetic risk scores.

C

Privacy-safe comparison reports to others in this study

Example: Seeing summarized survey responses from study participants to understand how you compare to others — no identities shown.

D

Understanding my impact on the study

Example: Learning how your participation contributes to the overall research effort.

E

Regular updates on how researchers use study data

F

Share my personal story

Example: Submit writing or video that may be featured by the study team.

G

Tools or resources to help share the study with others.

Example: an advocacy toolkit with suggested content.

H

Understanding my non-genetic breast cancer risk

Example: Embed the National Cancer Institute risk assessment calculator into the App.

I

Other

Next, we’re asking specifically about what would make you more likely to take additional actions — not just what you value.

Q4. Which of the following would make you more likely to complete additional surveys or tasks, or recommend the study to others if these ideas were available?

Select All that Apply

Q4. Which of the following would make you more likely to complete additional surveys or tasks, or recommend the study to others if these ideas were available?

A

Seeing how my ancestry relates to general breast cancer risk.

B

A personalized genetic trait dashboard.

C

Privacy-safe comparison reports to others in this study.

D

Understanding my impact on the study.

E

Regular updates on what researchers are doing with the data.

F

Tools or resources to help share the study with others.

G

A way to track referrals if I choose to share the study.

H

Acknowledgement for my contributions. (e.g., Receive badges, recognition in study communications).

I

Ability to nudge my referrals (e.g., send reminders anonymously).

J

None of these — I'm unlikely to do more than I have done so far.

Q5. How likely are you to continue to contribute to this study?

For example, by taking more surveys, securely sharing your health records, or participating in feedback sessions.

Q6. How likely are you to refer this study to others?

Even if you have already made referrals.

Genetics of Breast Cancer Research Study Feedback Survey

Q1. What was your primary reason for joining this study?

Q2. How has breast cancer primarily affected you?

Q3. If the features below were available, which would make your participation feel more meaningful or worthwhile to you?

Next, we’re asking specifically about what would make you more likely to take additional actions — not just what you value.

Q4. Which of the following would make you more likely to complete additional surveys or tasks, or recommend the study to others if these ideas were available?

Q5. How likely are you to continue to contribute to this study?

Q6. How likely are you to refer this study to others?

Q7. Anything else you'd like to share?