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Vestibular Patient Discovery Interview

Version 0.2 — May 27, 2026

What This Is

We're building a tool to help people with vestibular disorders find the right words for what they're experiencing, and get to the right specialist faster.
This survey takes about 10 minutes. It is longer than most, because we're trying to actually understand your experience, not just collect demographics. Your responses directly shape what gets built. All responses are anonymous.

Your Background

How long have you been experiencing vestibular symptoms?

How long have you been experiencing vestibular symptoms?
A
B
C
D
E

Have you received a formal diagnosis?

Have you received a formal diagnosis?
A
B
C
D

If yes, what is your diagnosis? (check all that apply)

If yes, what is your diagnosis? (check all that apply)

If you have a diagnosis, who gave it to you?

If you have a diagnosis, who gave it to you?
A
B
C
D
E
F
G
H
I

Do you feel you are currently properly diagnosed?

Do you feel you are currently properly diagnosed?
A
B
C
D

How many doctors or specialists have you seen for your vestibular symptoms?

How many doctors or specialists have you seen for your vestibular symptoms?
A
B
C
D
E

Have you experienced any of the following alongside your vestibular symptoms? (check all that apply)

Have you experienced any of the following alongside your vestibular symptoms? (check all that apply)

Describing Your Symptoms

What words or phrases do you use when describing the FEELING of your symptoms to others?

Note: Try to recall specific words or phrases you've used. For example: "swimmy," "wobbly," "like I'm on a boat," "drunk feeling." The more specific, the better.

What words do you use when describing what your symptoms DO TO YOU — how they affect your daily life?

For example: "I can't look at screens," "I can't turn my head," "I feel disconnected from my body."

Is there a difference between how you describe your condition to friends or family and how your doctor describes it? If yes, give an example.

Is there anything about your vestibular experience that you've never been able to adequately put into words for a doctor?

Think about sensations, fears, or experiences that don't seem to have a word. Even partial descriptions help.

What is the hardest part of explaining what you're experiencing to a doctor or loved one?

Have you ever felt dismissed or not believed by a healthcare provider about your vestibular symptoms?

Have you ever felt dismissed or not believed by a healthcare provider about your vestibular symptoms?
A
B
C
D

Have you ever been referred to the wrong specialist? (check all that apply)

Have you ever been referred to the wrong specialist? (check all that apply)

Your Appointment Experience

How do you currently prepare for specialist appointments? (check all that apply)

How do you currently prepare for specialist appointments? (check all that apply)

What do you wish your doctor knew or understood before you walked into the appointment room?

How often do you leave appointments feeling like you were fully understood?

How often do you leave appointments feeling like you were fully understood?
A
B
C
D
E

Describe your worst appointment experience. What went wrong and how did it make you feel?

Only share what you're comfortable with.

Does someone close to you (partner, parent, friend) help you manage your condition? If yes, what do they do?

What You Wish Existed

If you could wave a wand and have one tool exist to help with your vestibular journey, what would it do?

Imagine a tool that helped you describe your vestibular symptoms in clinical language, identified which type of specialist you should see, and generated a one-page summary to bring to your appointment. How would that change your experience as a patient?

How likely would you be to use a tool like this?

How likely would you be to use a tool like this?
A
B
C
D
E

What would make you trust a tool like this? (check all that apply)

What would make you trust a tool like this? (check all that apply)

Is there anything else you want us to know about your experience as a vestibular patient — something you wish someone would build or fix?

What country are you based in?

Thank you for sharing your experience. Your responses will directly shape Clariva, a tool being built to help vestibular patients find clarity and get to the right care faster.
If you'd like to be notified when we launch, leave your email below.

Your email address (optional — never shared)