Vestibular Patient Discovery Interview

We're building a tool to help people with vestibular disorders find the right words for what they're experiencing, and get to the right specialist faster.

This takes about 4 minutes. Most of it is open-ended, because we're trying to understand your experience in your own words, not just collect boxes. Your answers directly shape what gets built. Responses are anonymous unless you choose to leave an email at the end (optional).

Have you received a formal diagnosis?

If you have a diagnosis, what is it? (check all that apply)

Have you ever felt dismissed or not believed by a healthcare provider about your vestibular symptoms?

Describing Your Symptoms

What words or phrases do you use when describing the FEELING of your symptoms to others?

Note: Try to recall specific words or phrases you've used. For example: "swimmy," "wobbly," "like I'm on a boat," "drunk feeling." The more specific, the better.

What words do you use when describing what your symptoms DO TO YOU — how they affect your daily life?

For example: "I can't look at screens," "I can't turn my head," "I feel disconnected from my body."

Is there a difference between how you describe your condition to friends or family and how your doctor describes it? If yes, give an example.

Is there anything about your vestibular experience that you've never been able to adequately put into words for a doctor?

Think about sensations, fears, or experiences that don't seem to have a word. Even partial descriptions help.

What is the hardest part of explaining what you're experiencing to a doctor or loved one?

What You Wish Existed

Imagine a tool that helped you describe your vestibular symptoms in clinical language, pointed you to the right kind of specialist, and generated a one-page summary to bring to your appointment. How likely would you be to use it?

Is there anything else you want us to know about your experience as a vestibular patient — something you wish someone would build or fix?

Thank you for sharing your experience. Your answers will directly shape Bearings, a tool being built to help vestibular patients find clarity and get to the right care faster.

If you'd like to be notified when we launch — and to be invited to a short follow-up survey later — leave your email below. (Optional and never shared.)