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Understanding Facial Recovery Experiences

Hi, thank you so much for being here.

My name is Vishal, and I was diagnosed with Bell’s palsy when I was 16 and, like many people, recovery has been ongoing. I went through steroids early on and still receive Botox as part of management.

I’m hoping to learn how others experience recovery and support, especially between appointments and over time.

This short, anonymous survey is for research only and takes only 2 minutes to complete.

I really appreciate you taking the time to help - it genuinely means a lot.

Q1: When did your facial symptoms first begin?

Q1: When did your facial symptoms first begin?
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Q2: What is your age range

(Optional)
Q2: What is your age range
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Q3: How can you usually tell whether your facial movement is improving?

Q4: Which of the following have you used to check or track your progress?

Q4: Which of the following have you used to check or track your progress?

Q5: On a scale of 0-10, how clear is it to you right now whether you are improving?

(0 = not clear at all, 10 = very clear)
Q5: On a scale of 0-10, how clear is it to you right now whether you are improving?

Q6: On a scale from 0–10, how much mental energy does thinking about your facial recovery take in a typical day?

(0 = none, 10 = a lot)
Q6: On a scale from 0–10, how much mental energy does thinking about your facial recovery take in a typical day?

Q7: On a scale from 0–10, how supported do you feel between appointments or check-ins?

(0 = not supported at all, 10 = very supported)
Q7: On a scale from 0–10, how supported do you feel between appointments or check-ins?

Q8: In the past month, have you ever wanted clearer feedback about whether you were improving but didn’t have it?

Q8: In the past month, have you ever wanted clearer feedback about whether you were improving but didn’t have it?
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Q9: How comfortable are you with recording short videos of your face on your own phone to keep track of changes over time?

Q9: How comfortable are you with recording short videos of your face on your own phone to keep track of changes over time?
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Q10: What is the single hardest part of this experience for you right now?

Q11: Would you be open to a 10-minute conversation to talk more about your experience?

(Optional)
Q11: Would you be open to a 10-minute conversation to talk more about your experience?
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B

Q12: Email

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